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I'd swell up once a week - now my life has changed
United Kingdom🩺 Health6 days ago

I'd swell up once a week - now my life has changed

Jack Cope, a 30-year-old joiner from Bedford, has lived with hereditary angioedema (HAE) since birth, a genetic disorder causing severe and unpredictable swelling in various parts of the body, including the throat, stomach, and face. The condition significantly impacted his daily life, leading to frequent attacks that required emergency care. Recently, Jack participated in a clinical trial at Addenbrooke's Hospital in Cambridge, which has dramatically reduced his symptoms. He reports going from experiencing weekly attacks to nearly a year without any significant issues. The trial, supported by the National Institute for Health and Care Research (NIHR), involves testing new treatments for HAE, and Jack encourages others with the condition to explore similar trials. His mother and grandmother also suffer from HAE, highlighting the hereditary nature of the disease.

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BBC News (UK) logoBBC News (UK)State / PublicCenter6 days ago
I'd swell up once a week - now my life has changed

Jack Cope, a 30-year-old joiner from Bedford, has lived with hereditary angioedema (HAE) since birth, a genetic disorder causing severe and unpredictable swelling in various parts of the body, including the throat, stomach, and face. The condition significantly impacted his daily life, leading to frequent attacks that required emergency care. Recently, Jack participated in a clinical trial at Addenbrooke's Hospital in Cambridge, which has dramatically reduced his symptoms. He reports going from experiencing weekly attacks to nearly a year without any significant issues. The trial, supported by the National Institute for Health and Care Research (NIHR), involves testing new treatments for HAE, and Jack encourages others with the condition to explore similar trials. His mother and grandmother also suffer from HAE, highlighting the hereditary nature of the disease.

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