United KingdomClare Adams, a 45-year-old woman from Cheshire, UK, was diagnosed with a rare and severe form of pulmonary hypertension after catching the flu during a holiday in Turkey in 2023. Following her return, she experienced persistent breathing difficulties and other symptoms, which led to multiple medical evaluations. Initially misdiagnosed with long COVID, she was later identified with pulmonary arterial hypertension, a rare condition that affects the blood vessels in the lungs and can severely impact the heart. By 2025, she received a more specific diagnosis of pulmonary veno-occlusive disease (PVOD), a life-threatening variant of pulmonary hypertension. Her prognosis is grim, with doctors estimating she has only weeks or months to live. However, she is undergoing treatment with epoprostenol to manage her condition and is seeking a double lung transplant to extend her life.
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