Alzheimer's and heat, carers' alarm: 1.5 million sufferers and 4 million family members left alone.

With temperatures reaching record highs this summer, the challenges faced by individuals with dementia and their caregivers have intensified. The Federation of Alzheimer’s Italy has raised concerns over the growing strain on families and care networks, warning that 1.5 million people living with dementia and four million family members are left isolated and unsupported. To address these issues, the organization has released a practical guide offering advice for navigating the summer months more calmly. The free service Pronto Alzheimer is available for information, support, and consultation via the number 02 809767, operating Monday through Friday from 9 a.m. to 1 p.m. and 2 p.m. to 6 p.m. The numbers behind the crisis reveal a pressing need for systemic change. According to Mario Possenti, general secretary of the Federation, there are currently 1.48 million people living with dementia in Italy, alongside over four million relatives who provide daily care. These figures highlight an emergency that remains under-addressed within the country's healthcare system. Possenti emphasized that caregivers often face financial burdens, logistical difficulties, and continuous emotional demands. He pointed out that regional disparities significantly affect access to timely diagnosis, adequate treatment pathways, and local support services. He called for a national policy shift, urging recognition of dementia as a priority issue beyond just health care, one that impacts the broader welfare system. To tackle these challenges, Possenti outlined several key demands, including structural funding for the National Dementia Plan, standardized assistance pathways nationwide, an effective law protecting caregivers, and the realisation of reforms aimed at supporting elderly individuals who require care. He stressed the importance of involving people with dementia, their families, and representative associations in shaping public policies. “No further delay is acceptable,” he stated, highlighting how decisions directly impact quality of life, dignity, and rights. The Federation’s guidelines focus on placing the individual at the center of care. They suggest starting each activity by considering the person’s interests, habits, familiar environments, and potential obstacles. Communication should encourage collaboration, using language that invites participation rather than commands. During the summer, activities should be brief, with regular breaks to avoid overwhelming the individual. Sessions can last between 15 and 60 minutes, allowing for pauses or changes in plans. Short, positive experiences are preferable to long, exhausting ones. In addition to structured routines, the Federation recommends alternating indoor and outdoor activities while emphasizing the importance of shared effort. Susanna De Biagi, a occupational therapist with the Federation, explained that planning activities should always begin with understanding the individual’s preferences and abilities. “Even during the hottest months, it is essential to continue offering opportunities for engagement, adapting them to current capacities and choosing familiar experiences,” she added. Maintaining some form of routine helps the person feel connected and valued within their community. She also highlighted the necessity of involving others, family, friends, neighbors, in caregiving efforts, ensuring that no one is left alone in managing the responsibilities. One such story comes from Mirella and Maurizio, whose lives have been deeply affected by the condition. Their experience illustrates the ongoing struggle many families face, underscoring the urgent need for better resources and support systems. As the summer continues, the Federation hopes its guidance will offer relief and clarity to those navigating this complex situation.